What does Preamble of Ellie’s Law do?

This bill aims to provide for further comprehensive research. The research will be conducted at the National Institute of Neurological Disorders and Stroke. The focus of the research is on unruptured intracranial aneurysms.

What does SHORT TITLE. of Ellie’s Law do?

This bill is formally titled the Ellie Helton, Lisa Colagrossi, Kristen Shafer Englert, Teresa Anne Lawrence, and Jennifer Sedney Focused Research Act, also known as Ellie's Law.

What does FINDINGS. of Ellie’s Law do?

This section outlines findings related to brain aneurysms, noting an estimated 6,800,000 people in the U.S. have an unruptured aneurysm. Approximately 30,000 people in the U.S. experience a brain aneurysm rupture annually, with about half of these cases being fatal. Brain aneurysms are more prevalent in women and are nearly twice as likely to rupture in African American and Hispanic individuals. The section highlights the stories of several individuals, including Ellie Helton, Lisa Colagrossi, Kristen Shafer Englert, Teresa Anne Lawrence, and Jennifer Sedney, who tragically died from ruptured brain aneurysms. Brain aneurysm ruptures impose a significant financial burden, with an estimated $2 billion in direct annual costs to patients and a median expected patient payment of $144,000. Federal spending on brain aneurysm research is relatively low, at approximately $2.94 per person affected annually. Research from the International Study on Unruptured Intracranial Aneurysms (ISUIA) has contributed to a better understanding of managing and treating unruptured aneurysms.

What does FUNDING. of Ellie’s Law do?

This section authorizes appropriations for research on unruptured intracranial aneurysms. The National Institute of Neurological Disorders and Stroke is designated to conduct or support this research. A total of $10,000,000 is authorized for each fiscal year from 2026 through 2030. These funds are to remain available until September 30, 2033. The research should study a broader patient population diversified by age, sex, and race. The authorized funds are intended to supplement, not supplant, existing funding for brain aneurysm research.

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Ellie’s Law

Last updated: 5/6/2025 · Introduced: 5/6/2025

Author: Richard Blumenthal (D-CT)

TL;DR (AI)

This bill authorizes $10,000,000 annually from 2026 through 2030 for research on unruptured intracranial aneurysms, managed by the National Institute of Neurological Disorders and Stroke.
The research aims to study a diverse patient population across age, sex, and race to improve understanding and treatment of these aneurysms.
The bill intends to supplement, rather than replace, existing federal funding for brain aneurysm research.

119th Congressin committeeHR. 2678(In Committee)Official page

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Other Sections

Includes provisions on preamble, short title., and 2 more.

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