What does Preamble of PKD Cures Act do?

This bill is formally titled 'To support polycystic kidney disease research, and for other purposes.'

What does SHORT TITLE. of PKD Cures Act do?

This bill is formally titled the PKD Cures Act.

What does FINDINGS. of PKD Cures Act do?

This section outlines findings related to Polycystic Kidney Disease (PKD). PKD is described as one of the most common life-threatening genetic diseases, affecting approximately 500,000 Americans and millions globally. The majority of individuals with PKD progress to end-stage renal disease (kidney failure), requiring dialysis and transplantation. Over 5 percent of Medicare End-Stage Renal Disease program participants have kidney failure due to cystic kidney diseases, primarily PKD. Medicare incurs an estimated $3,000,000,000 annually in costs associated with end-stage renal disease and kidney failure attributable to cystic kidney diseases like PKD.

What does EXPANSION OF NIH RESEARCH ON POLYCYSTIC KIDNEY DISEASE. of PKD Cures Act do?

This section amends the Public Health Service Act to expand National Institutes of Health (NIH) research on polycystic kidney disease (PKD). The Director of the Institute is directed to expand and intensify research activities regarding PKD, including basic, translational, and clinical research. Collaboration with federal agencies, academic institutions, and private sector stakeholders is required to accelerate treatment and cure development. The Director must prioritize research proposals with a clear potential to advance understanding and treatment of PKD. The Director of NIH is tasked with establishing a working group to develop a comprehensive roadmap for PKD research and innovation. The working group will identify research gaps, recommend collaboration strategies, propose timelines, and integrate new technologies into PKD research and care. The working group must submit a report detailing its findings and recommendations, including the comprehensive roadmap, to Congress within 24 months of enactment.

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PKD Cures Act

Last updated: 6/4/2026 · Introduced: 6/4/2026

Author: Debbie Wasserman Schultz (D-FL)

TL;DR (AI)

This bill expands National Institutes of Health (NIH) research on polycystic kidney disease (PKD) to include basic, translational, and clinical studies.
The NIH Director must establish a working group to create a comprehensive research roadmap for PKD, identifying gaps and recommending collaboration strategies.
The working group will submit a report with its PKD research roadmap to Congress within two years of the bill's enactment.

119th Congressin committeeOfficial page

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Other Sections

Includes provisions on preamble, short title., and 2 more.

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