What does Preamble of Lainie Jones Comprehensive Cancer Survivorship Act of 2026 do?

This bill, formally titled 'To address the health of cancer survivors and unmet needs that survivors face through the entire continuum of care from diagnosis through active treatment and posttreatment,' aims to improve survivorship outcomes. The bill seeks to enhance survivorship, treatment, recovery, quality of life, palliative care, and long-term health outcomes for cancer survivors. A key objective is to develop a minimum standard of care for cancer survivorship, applicable regardless of cancer type, survivor background, or future needs.

What does FINDINGS. of Lainie Jones Comprehensive Cancer Survivorship Act of 2026 do?

This section outlines findings related to cancer survivors and their needs. Approximately 18 million Americans are currently cancer survivors, with projections reaching 26 million by 2040, highlighting a significant need for sustained care. Cancer survivors face ongoing emotional, psychological, and physical challenges, often persisting long after treatment ends. Survivors, particularly those from racial and ethnic minority groups or with lower socioeconomic status, experience lower quality of life scores. Rural cancer survivors have limited access to services and poorer outcomes compared to those in metropolitan areas. Child, adolescent, and young adult cancer survivors are at high risk for long-term health consequences. Cancer survivorship programs have demonstrated benefits, including increased physical activity and improved cardiovascular health. There is a lack of consensus regarding the definition of 'survivorship care' and when it should begin. Communication and treatment are often fragmented due to difficulties in transitioning from specialty to primary care. The findings emphasize the need for coordinated cancer survivorship studies and programs across federal agencies to improve health outcomes and quality of life.

What does DEFINITIONS. of Lainie Jones Comprehensive Cancer Survivorship Act of 2026 do?

This section defines terms related to cancer care and survivorship. Definitions include cancer survivor, caregiver, patient experience data, and psychosocial effects. The section also defines psychosocial care, survivorship, and survivorship care plan. A survivorship care plan is an individualized care plan for patients with cancer. The section provides a framework for understanding the needs of cancer patients and survivors.

What does COVERAGE OF CANCER CARE PLANNING AND COORDINATION SERVICES. of Lainie Jones Comprehensive Cancer Survivorship Act of 2026 do?

This section amends Section 1861 of the Social Security Act to include 'cancer care planning and coordination services' as a covered service. The definition of 'cancer care planning and coordination services' includes a treatment plan developed by a physician, physician assistant, or nurse practitioner that incorporates elements from the Institute of Medicine Care Management Plan. The treatment plan must be furnished in written or electronic form and consider the individual's cultural and linguistic needs. The Secretary is tasked with establishing frequencies for furnishing these services, including at diagnosis, changes in condition or preferences, transition to survivorship care, and cancer recurrence. Section 1848(j)(3) of the Social Security Act is amended to include cancer care planning and coordination services under the physician fee schedule. The initial payment rate for these services will be the same as the rate for transitional care management services (CPT code 99496) unless otherwise specified by the Secretary. The amendments apply to services furnished on or after the first day of the first calendar year that begins after the date of enactment of this Act.

What does STAKEHOLDER MEETING ON SURVIVORSHIP TRANSITION TOOLS; of Lainie Jones Comprehensive Cancer Survivorship Act of 2026 do?

The Secretary shall convene a stakeholder meeting to evaluate strategies for improving transitions in care from active treatment to long-term. The meeting shall include representatives from patient advocacy organizations, medical professional societies, and other stakeholders. The Secretary shall ensure participants consider existing tools for improving transitions to survivorship care. The Secretary shall publish information resources for cancer patients and providers on strategies for consolidating treatment history and survivorship guidelines. The information resources shall include recommendations on patient use of software application programs.

What does ALTERNATIVE PAYMENT MODEL FOR QUALITY CANCER SURVIVORSHIP CARE. of Lainie Jones Comprehensive Cancer Survivorship Act of 2026 do?

This section directs the Secretary of Health and Human Services to develop an alternative payment model for cancer survivorship care under Medicare (titles XVIII and XIX of the Social Security Act). The model must be developed within one year of the Act's enactment. The Secretary is required to submit a report to Congress detailing the alternative payment model, including triggers for entry, duration of participation, and strategies for care coordination. The report must outline navigation services, bundled payment packages, and follow-up screening procedures. The model should promote shared decision-making and address social determinants of health. The report should specify which healthcare providers, including genetic counselors and mental health professionals, can furnish services under the model. Strategies for applying evidence-based risk stratification to personalize care pathways are required. The report must include a plan for testing the alternative payment model, including analysis of its impact and potential barriers.

What does CANCER SURVIVOR EMPLOYMENT ASSISTANCE PROGRAM. of Lainie Jones Comprehensive Cancer Survivorship Act of 2026 do?

The Secretary of Labor shall carry out a program to award grants for education and assistance to eligible cancer survivors and their families. The program includes assistance for cancer survivors who stay in the workforce during treatment, those who leave and reenter, and those unable to work after a cancer diagnosis. Program components include career and training services, supportive services, and financial assistance during medical leave. The program also provides assistance with premiums for continuation coverage and career services for survivors who cannot return to work after treatment. The Secretary of Labor shall use evidence-based resources in carrying out this section.

What does COMPREHENSIVE CANCER SURVIVORSHIP PROGRAM. of Lainie Jones Comprehensive Cancer Survivorship Act of 2026 do?

This section establishes a Comprehensive Cancer Survivorship Program to improve the quality of life and long-term survivorship of cancer survivors. The Secretary is directed to award grants to eligible entities to provide supportive care services to cancer survivors. Eligible entities include State cancer programs, National Cancer Institute-designated cancer centers, and community-based organizations focused on cancer survivors. Grant funds must be used to enhance quality of life and improve long-term survival rates, including promoting physical activity, addressing mental health concerns, and facilitating access to support services. Applicants for grants must detail how they will provide cancer navigator services, address barriers to care for underserved communities, and support caregivers. The Secretary is responsible for outreach, data analysis, sharing best practices, and coordinating the program with alternative payment models for quality survivorship care. The program must commence operating not later than 18 months after the date of enactment of this Act.

What does SURVIVORSHIP PROGRESS REPORT. of Lainie Jones Comprehensive Cancer Survivorship Act of 2026 do?

This section mandates a study of progress in cancer survivorship, beginning from the enactment of the National Cancer Act of 1971. The Secretary must enter into an agreement with the Government Accountability Office (GAO) to conduct this study within six months of the Act's enactment. The study will investigate various aspects of survivorship care, including its quality, transitions from treatment, quality of life for survivors, outcomes, disparities in access, healthcare systems, community-based services, and payment models. The study will also consider the role and impact of the Office of Cancer Survivorship over the past 25 years. The Comptroller General is required to hold a public meeting with a broad range of stakeholders to inform the study's findings. Stakeholders to be included in the public meeting include cancer survivors, caregivers, patient organizations, oncologists, primary care providers, researchers, epidemiologists, and third-party payors. The Comptroller General will release a report on the study's results and convene another public meeting on the day of the report's release, including all previously listed stakeholders.

What does MEDICAID COVERAGE OF HEALTHCARE TRANSITIONS FOR SURVIVORS OF of Lainie Jones Comprehensive Cancer Survivorship Act of 2026 do?

This section amends the Social Security Act to make medical assistance available for healthcare transitions for survivors of childhood and adolescent cancer. It defines 'healthcare transitions for survivors of childhood and adolescent cancer' as transition services from oncological care to primary care, including survivorship care plans and transition coverage. These services include transition care based on the Children's Oncology Group (COG) Long-term Follow-Up Guidelines. Coverage includes the COG exposure-based standard of care for risk assessment and surveillance recommendations. Transition services must include evidence-based recommendations for screening and management of late effects and follow-up care. The legislation mandates at least two survivorship transition care visits per year.

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Lainie Jones Comprehensive Cancer Survivorship Act of 2026

Last updated: 5/14/2026 · Introduced: 5/14/2026

Author: Debbie Wasserman Schultz (D-FL)

TL;DR (AI)

The bill amends the Social Security Act to include cancer care planning and coordination services as a covered service under Medicare.
A stakeholder meeting will be convened to evaluate strategies for improving transitions in care from active treatment to long-term survivorship.
The Secretary of Health and Human Services will develop an alternative payment model for cancer survivorship care under Medicare within one year of the Act's enactment.
The bill establishes a Comprehensive Cancer Survivorship Program to improve the quality of life and long-term survivorship of cancer survivors through grants to eligible entities.
Medicaid coverage will be expanded to include healthcare transitions for survivors of childhood and adolescent cancer, as well as cancer fertility services for cancer survivors.

119th Congressin committeeOfficial page

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Includes provisions on preamble, findings., and 10 more.

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