What does Preamble of FED UP with Bleeding Disorders Act of 2026 do?

This bill aims to provide for increased research and initiatives related to bleeding disorders. The bill specifically focuses on underserved populations.

What does SHORT TITLE. of FED UP with Bleeding Disorders Act of 2026 do?

This bill is formally titled the Fostering Effective Diagnosis and Treatment for Underserved Populations with Bleeding Disorders Act of 2026.

What does FINDINGS. of FED UP with Bleeding Disorders Act of 2026 do?

This section outlines findings related to bleeding disorders in women. It states that as many as 1 percent of women in the United States may have a bleeding disorder, and many are unaware. Women often experience significant delays in diagnosis, sometimes exceeding 16 years. Early diagnosis for women with von Willebrand disease aligns with Healthy People 2030 goals. Lack of diagnosis prevents women from receiving specialized care, potentially increasing mortality and hospitalization rates. Women with bleeding disorders face a higher risk of adverse pregnancy outcomes. A significant portion of female carriers of hemophilia A or B have low factor levels and are at risk for bleeding. Heavy menstrual bleeding incurs substantial economic costs, both direct ($1,000,000,000 annually) and indirect ($12,000,000,000 annually). Research into bleeding disorders benefits the U.S. military and trauma care efforts.

What does INTERAGENCY REVIEW RELATED TO BLEEDING DISORDERS IN CERTAIN of FED UP with Bleeding Disorders Act of 2026 do?

This section directs the Secretary of Health and Human Services to conduct a review of Federal programs, activities, and strategic plans related to bleeding disorders in women and girls. The review will focus on the state of scientific knowledge, provider training, access to treatment, and inclusion of women and girls in clinical research. The Secretary must submit a comprehensive report to the House and Senate committees within two years of the Act's enactment. The report will include a summary of the review, recommendations for improvement, and suggestions for better coordination among Federal agencies. The Secretary is required to provide public comment periods during the review and report preparation phases. The term 'bleeding disorder' is defined as an inheritable disorder impairing blood clotting, including hemophilia, von Willebrand disease, and rare factor deficiencies.

What does NATIONAL PUBLIC EDUCATION AND AWARENESS CAMPAIGN WITH RESPECT of FED UP with Bleeding Disorders Act of 2026 do?

This section establishes a national public education and awareness campaign regarding bleeding disorders in women and girls. The Secretary will award grants or contracts to entities to carry out the campaign, utilizing information from a report under section 3. The campaign must be nationwide, evidence-based, and target both women and girls and healthcare providers. Strategies must be used to reach individuals in rural and underserved areas, and resources should be culturally and linguistically appropriate. The Secretary is required to consult with stakeholders, including bleeding disorders organizations and grant recipients. The Secretary must establish benchmarks and conduct assessments of the campaign. An evaluation of the campaign will be submitted to the Senate and House committees. There is authorization of appropriations of $10,000,000 for each of fiscal years 2027 through 2031 to carry out this section.

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FED UP with Bleeding Disorders Act of 2026

Last updated: 5/13/2026 · Introduced: 5/13/2026

Author: Julie Johnson (D-TX)

TL;DR (AI)

This bill mandates a comprehensive review of federal programs related to bleeding disorders in women and girls, requiring a report with recommendations for improvement within two years.
It establishes a national public education and awareness campaign targeting women, girls, and healthcare providers, with a focus on underserved areas and culturally appropriate resources.
The bill authorizes $10,000,000 annually from 2027 through 2031 to fund the national public education and awareness campaign.

119th Congressin committeeOfficial page

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Other Sections

Includes provisions on preamble, short title., and 3 more.

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