What does Preamble of Candis King Hope for Sickle Cell Families Act do?

This bill, formally titled 'To direct the Secretary of Health and Human Services to carry out a program under which the Secretary will collect data with respect to sickle cell disease in the United States, and for other purposes,' aims to establish a program for data collection regarding sickle cell disease within the United States.

What does SHORT TITLE. of Candis King Hope for Sickle Cell Families Act do?

This bill is formally titled the 'Candis King Hope for Sickle Cell Families Act'.

What does SICKLE CELL DATA COLLECTION PROGRAM. of Candis King Hope for Sickle Cell Families Act do?

This section establishes the Sickle Cell Data Collection program. The Secretary of Health and Human Services, through the Director of the Centers for Disease Control and Prevention, will administer the program. The program will involve awarding grants to states to collect data on sickle cell disease incidence and prevalence. Data collection aims to understand the disease's incidence, prevalence, demographics of affected individuals, and healthcare utilization patterns. The program encourages collaboration to standardize sickle cell disease surveillance methods. The program is authorized to receive $10,000,000 annually from fiscal years 2027 through 2031.

What does DIVISION OF BLOOD DISORDERS AND PUBLIC HEALTH GENOMICS. of Candis King Hope for Sickle Cell Families Act do?

This section directs the Secretary of Health and Human Services to reinstate covered employees of the Division of Blood Disorders and Public Health Genomics at the Centers for Disease Control and Prevention. A 'covered employee' is defined as an employee of the Division who was removed on or after January 1, 2025, due to agency actions, including reductions in force or reorganizations. These actions must result in the removal of 3 percent or more of the Division's total employees within a 60-day period.

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Candis King Hope for Sickle Cell Families Act

Last updated: 3/24/2026 · Introduced: 3/24/2026

Author: Eugene Vindman (D-VA)

TL;DR (AI)

This bill establishes a national program to collect data on sickle cell disease, including incidence, prevalence, and healthcare utilization, by awarding grants to states.
The bill provides $10 million annually from 2027 through 2031 to fund the Sickle Cell Data Collection program.
This legislation directs the reinstatement of Centers for Disease Control and Prevention employees from the Division of Blood Disorders and Public Health Genomics who were removed due to agency actions.

119th Congressin committeeOfficial page

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Includes provisions on preamble, short title., and 2 more.

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