What does Preamble of Shane DiGiovanna Act do?

This bill requires the Secretary of Health and Human Services to establish a demonstration program. The demonstration program will test mandatory coverage of treatment for wound care for epidermolysis bullosa. The program will operate under the Medicaid program.

What does SHORT TITLE. of Shane DiGiovanna Act do?

This Act is formally titled the Shane DiGiovanna Act.

What does DEMONSTRATION PROGRAM TO TEST MANDATORY COVERAGE OF TREATMENT of Shane DiGiovanna Act do?

This section establishes a 2-year demonstration program to test mandatory Medicaid coverage for specific wound care treatments for epidermolysis bullosa. The program will begin no later than one year after the Act's enactment. Covered items and services include over-the-counter medications like antihistamines and acetaminophen, antiseptics, zinc oxide, antibiotic ointments, and wound care supplies. The demonstration program will be conducted nationwide. The Secretary is required to submit a report to Congress within one year of the program's end, evaluating its impact on Medicaid expenditures, health outcomes, and providing recommendations to prevent hospitalizations related to epidermolysis bullosa.

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Shane DiGiovanna Act

Last updated: 3/17/2026 · Introduced: 3/9/2026

Author: Greg Landsman (D-OH)

TL;DR (AI)

The Shane DiGiovanna Act creates a 2-year demonstration program within Medicaid to test mandatory coverage for wound care treatments related to epidermolysis bullosa.
This program will cover specific wound care items and services, including medications and supplies, available nationwide.
The Secretary of Health and Human Services must report to Congress on the program’s impact on Medicaid costs, health outcomes, and hospitalization prevention for individuals with epidermolysis bullosa.

119th Congressin committeeOfficial page

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Other Sections

Includes provisions on preamble, short title., and 1 more.

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