What does Preamble of HR 7336 do?

This bill aims to amend title XVIII of the Social Security Act. The proposed amendment would provide coverage of ALS-related services under the Medicare program. The coverage is specifically for individuals diagnosed with amyotrophic lateral sclerosis.

What does SHORT TITLE. of HR 7336 do?

This bill is formally titled the ALS Better Care Act.

What does FINDINGS. of HR 7336 do?

This section outlines findings related to Amyotrophic Lateral Sclerosis (ALS). ALS is described as a progressive and debilitating neurodegenerative disease. Key services, including specialized physician support, therapy, and equipment coordination, are crucial for managing ALS patients' needs. Studies indicate that ALS clinics providing these services can extend patients' lifespans and improve their quality of life. Current Medicare reimbursement rates for these key services are considered inadequate. Insufficient reimbursement creates challenges for ALS care facilities, potentially leading to longer wait times and hindering innovation. Improved reimbursement rates are believed to encourage investment in research and improved treatment options. Remote medical management, particularly telehealth, is identified as crucial for ALS patients, especially those in rural areas or care deserts. Telehealth is highlighted as essential for maintaining access to care as the disease progresses and mobility decreases. Low funding and staffing difficulties for ALS clinical trials are noted as barriers to developing new treatments and therapies.

What does PROVIDING FOR COVERAGE OF ALS-RELATED SERVICES UNDER THE of HR 7336 do?

This section amends the Social Security Act to provide coverage for ALS-related services under the Medicare program. ALS-related services are defined as items and services furnished to a covered ALS individual in an outpatient setting by a qualified provider for the care and treatment of amyotrophic lateral sclerosis. A single payment system will be implemented for ALS-related services, starting at $800 in 2027 and potentially increasing based on recommendations from the Comptroller General and market basket percentage increases. The Comptroller General will submit reports recommending payment amounts, considering data from various sources including health insurance issuers and clinical trial participation. The Secretary will establish a mechanism for payments based on ICD-10-CM codes for amyotrophic lateral sclerosis diagnoses. Cost sharing will not be allowed for ALS-related services under this provision. Qualified providers must meet requirements prescribed by the Secretary, in consultation with ALS patients, physicians, and relevant organizations.

What does REPORT ON CHALLENGES WITH RESPECT TO THE ADMINISTRATION AND of HR 7336 do?

This section requires the Secretary of Health and Human Services, through the Director of the National Institute of Neurological Disorders and Stroke (NINDS), to submit a report to Congress and publish it online. The report must identify challenges related to the administration and staffing of clinical trials for amyotrophic lateral sclerosis (ALS). The report should also propose actions the NINDS Director can take to address these challenges. Finally, the report may include legislative recommendations, potentially including requests for appropriations, to improve ALS clinical trial administration.

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ALS Better Care Act — HR. 7336

Last updated: 2/3/2026 · Introduced: 2/3/2026

Author: Janice Schakowsky (D-IL)

TL;DR (AI)

The ALS Better Care Act amends Medicare to cover ALS-related services, including specialized physician support, therapy, and equipment coordination, for individuals diagnosed with amyotrophic lateral sclerosis.
The bill establishes a single payment system for these ALS-related services, starting at $800 in 2027, with potential increases based on recommendations and market adjustments, and eliminates cost-sharing for beneficiaries.
The bill requires a report to Congress identifying challenges in administering ALS clinical trials and proposing actions to improve them, potentially including legislative or appropriations requests.

119th Congressin committeeS. 3763(In Committee)Official page

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Other Sections

Includes provisions on preamble, short title., and 3 more.

5 sections

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