What does Preamble of HR 5178 do?

This bill proposes to amend title XIX of the Social Security Act. The proposed amendment would enable State Medicaid programs to provide comprehensive, coordinated care. This care would be delivered through a health home to individuals with sickle cell disease.

What does SHORT TITLE. of HR 5178 do?

This bill is formally titled the Sickle Cell Disease Comprehensive Care Act.

What does ENABLING STATE MEDICAID PROGRAMS TO PROVIDE CARE THROUGH HEALTH of HR 5178 do?

This section amends the Social Security Act to enable states to provide health home services to individuals with sickle cell disease. Beginning January 1, 2026, states may submit a 'sickle cell disease-focused State plan amendment' to the Secretary to provide health home services specifically for eligible individuals with sickle cell disease. If a State plan amendment is approved, it must ensure the provision of dental and vision services to eligible individuals with sickle cell disease enrolled in the health home, regardless of existing state requirements. States with such amendments must submit a report to the Secretary, not later than the last day of the 8th fiscal year quarter, detailing the quality of care, access to care, and expenditures for eligible individuals. The Secretary will specify applicable measures for determining quality, access, and expenditures for the report. The Secretary must publish best practices for designing and implementing a sickle cell disease-focused State plan amendment by June 30, 2026. An 'eligible individual with sickle cell disease' is defined as someone eligible for Medicaid and who has sickle cell disease.

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Sickle Cell Disease Comprehensive Care Act — HR. 5178

Last updated: 9/8/2025 · Introduced: 9/8/2025

Author: Neal Dunn (R-FL)

TL;DR (AI)

This bill allows states to offer comprehensive, coordinated health home services to Medicaid recipients with sickle cell disease.
Approved state plans must include dental and vision services for eligible individuals, regardless of existing state requirements.
States will report on the quality, access, and costs of care provided, and the Secretary will publish best practices for implementing these programs.

119th Congressin committeeOfficial page

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Other Sections

Includes provisions on preamble, short title., and 1 more.

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