[Congressional Bills 116th Congress]
[From the U.S. Government Publishing Office]
[H.R. 1058 Enrolled Bill (ENR)]
H.R.1058
One Hundred Sixteenth Congress
of the
United States of America
AT THE FIRST SESSION
Begun and held at the City of Washington on Thursday,
the third day of January, two thousand and nineteen
An Act
To amend the Public Health Service Act to enhance activities of the
National Institutes of Health with respect to research on autism
spectrum disorder and enhance programs relating to autism, and for other
purposes.
Be it enacted by the Senate and House of Representatives of the
United States of America in Congress assembled,

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This Act may be cited as the ``Autism Collaboration,
Accountability, Research, Education, and Support Act of 2019'' or the
``Autism CARES Act of 2019''.

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THE NIH WITH RESPECT TO RESEARCH ON AUTISM SPECTRUM DISORDER.
Section 409C of the Public Health Service Act (42 U.S.C. 284g) is
amended--
(1) in subsection (a)(1)--
(A) in the first sentence, by striking ``and toxicology''
and inserting ``toxicology, and interventions to maximize
outcomes for individuals with autism spectrum disorder''; and
(B) by striking the second sentence and inserting the
following: ``Such research shall investigate the causes
(including possible environmental causes), diagnosis or ruling
out, early and ongoing detection, prevention, services across
the lifespan, supports, intervention, and treatment of autism
spectrum disorder, including dissemination and implementation
of clinical care, supports, interventions, and treatments.'';
(2) in subsection (b)--
(A) in paragraph (2)--
(i) in the second sentence, by striking ``cause'' and
all that follows through ``disorder'' and inserting
``causes, diagnosis, early and ongoing detection,
prevention, and treatment of autism spectrum disorder
across the lifespan''; and
(ii) in the third sentence, by striking
``neurobiology'' and all that follows through the period
and inserting ``neurobiology, genetics, genomics,
psychopharmacology, developmental psychology, behavioral
psychology, and clinical psychology.''; and
(B) in paragraph (3), by adding at the end the following:
``(D) Reducing disparities.--The Director may consider, as
appropriate, the extent to which a center can demonstrate
availability and access to clinical services for youth and
adults from diverse racial, ethnic, geographic, or linguistic
backgrounds in decisions about awarding grants to applicants
which meet the scientific criteria for funding under this
section.''.

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(a) Developmental Disabilities Surveillance and Research Program.--
Section 399AA of the Public Health Service Act (42 U.S.C. 280i) is
amended--
(1) in subsection (a)(1), by striking ``adults on autism
spectrum disorder'' and inserting ``adults with autism spectrum
disorder'';
(2) in subsection (a)(2)--
(A) by striking ``State and local public health officials''
and inserting ``State, local, and Tribal public health
officials'';
(B) by striking ``or other developmental disabilities'' and
inserting ``and other developmental disabilities'';
(3) in subsection (a)(3), by striking ``a university, or any
other educational institution'' and inserting ``a university, any
other educational institution, an Indian tribe, or a tribal
organization'';
(4) in subsection (b)(2)(A), by striking ``relevant State and
local public health officials, private sector developmental
disability researchers, and advocates for individuals with
developmental disabilities'' and inserting ``State, local, and
Tribal public health officials, private sector developmental
disability researchers, advocates for individuals with autism
spectrum disorder, and advocates for individuals with other
developmental disabilities'';
(5) in subsection (d)--
(A) by redesignating paragraphs (1) and (2) as paragraphs
(2) and (3), respectively; and
(B) by inserting before paragraph (2), as so redesignated,
the following new paragraph:
``(1) Indian tribe; tribal organization.--The terms `Indian
tribe' and `tribal organization' have the meanings given such terms
in section 4 of the Indian Health Care Improvement Act.''; and
(6) in subsection (e), by striking ``2019'' and inserting
``2024''.
(b) Autism Education, Early Detection, and Intervention.--Section
399BB of the Public Health Service Act (42 U.S.C. 280i-1) is amended--
(1) in subsection (a)(1)--
(A) by striking ``individuals with autism spectrum disorder
or other developmental disabilities'' and inserting
``individuals with autism spectrum disorder and other
developmental disabilities''; and
(B) by striking ``children with autism spectrum disorder''
and all that follows through ``disabilities;'' and inserting
``individuals with autism spectrum disorder and other
developmental disabilities across their lifespan;'';
(2) in subsection (b)--
(A) in paragraph (2), by inserting ``individuals with''
before ``autism spectrum disorder'';
(B) by redesignating paragraphs (4) through (6) as
paragraphs (5) through (7), respectively; and
(C) by inserting after paragraph (3) the following:
``(4) promote evidence-based screening techniques and
interventions for individuals with autism spectrum disorder and
other developmental disabilities across their lifespan;'';
(3) in subsection (c)--
(A) in paragraph (1), in the matter preceding subparagraph
(A), by striking ``the needs of individuals with autism
spectrum disorder or other developmental disabilities and their
families'' and inserting ``the needs of individuals with autism
spectrum disorder and other developmental disabilities across
their lifespan and the needs of their families''; and
(B) in paragraph (2)--
(i) in subparagraph (A)(ii), by striking ``caregivers
of individuals with an autism spectrum disorder'' and
inserting ``caregivers of individuals with autism spectrum
disorder or other developmental disabilities'';
(ii) in subparagraph (B)(i)(II), by inserting ``autism
spectrum disorder and'' after ``individuals with''; and
(iii) in subparagraph (B)(ii), by inserting ``autism
spectrum disorder and'' after ``individuals with'';
(4) in subsection (e)--
(A) in paragraph (1)--
(i) in the matter preceding subparagraph (A), by
inserting ``across their lifespan'' before ``and ensure'';
and
(ii) in subparagraph (B)(iv), by inserting ``across
their lifespan'' after ``other developmental
disabilities'';
(B) by redesignating paragraphs (2) and (3) as paragraphs
(3) and (4), respectively; and
(C) by inserting after paragraph (1) the following:
``(2) Developmental-behavioral pediatrician training
programs.--
``(A) In general.--In making awards under this subsection,
the Secretary may prioritize awards to applicants that are
developmental-behavioral pediatrician training programs located
in rural or underserved areas.
``(B) Definition of underserved area.--In this paragraph,
the term `underserved area' means--
``(i) a health professional shortage area (as defined
in section 332(a)(1)(A)); and
``(ii) an urban or rural area designated by the
Secretary as an area with a shortage of personal health
services (as described in section 330(b)(3)(A)).'';
(5) in subsection (f), by inserting ``across the lifespan of
such individuals'' after ``other developmental disabilities''; and
(6) in subsection (g), by striking ``2019'' and inserting
``2024''.
(c) Interagency Autism Coordinating Committee.--Section 399CC of
the Public Health Service Act (42 U.S.C. 280i-2) is amended--
(1) in subsection (b)--
(A) in paragraph (2), by inserting ``across the lifespan of
such individuals'' before the semicolon; and
(B) in paragraph (5), by inserting ``across the lifespan of
such individuals'' before ``and the families'';
(2) in subsection (c)--
(A) in paragraph (1)(D), by inserting ``, the Department of
Labor, the Department of Justice, the Department of Veterans
Affairs, the Department of Housing and Urban Development,''
after ``Department of Education'';
(B) in subparagraphs (A), (B), and (C) of paragraph (2), by
striking ``at least two such members'' each place it appears
and inserting ``at least three such members'';
(C) in paragraph (3)(A), by striking ``one or more
additional 4-year terms'' and inserting ``one additional 4-year
term''; and
(3) in subsection (f), by striking ``2019'' and inserting
``2024''.
(d) Reports to Congress.--Section 399DD of the Public Health
Service Act (42 U.S.C. 280i-3) is amended--
(1) in subsection (a)--
(A) in paragraph (1), by striking ``Autism CARES Act of
2014'' and inserting ``Autism CARES Act of 2019''; and
(B) in paragraph (2)--
(i) in subparagraphs (A), (B), (D), and (E), by
striking ``Autism CARES Act of 2014'' each place it appears
and inserting ``Autism CARES Act of 2019'';
(ii) in subparagraph (G), by striking ``age of the
child'' and inserting ``age of the individual'';
(iii) in subparagraph (H), by striking ``; and'' and
inserting ``;'';
(iv) in subparagraph (I), by striking the period and
inserting ``; and''; and
(v) by adding at the end the following:
``(J) information on how States use home- and community-
based services and other supports to ensure that individuals
with autism spectrum disorder and other developmental
disabilities are living, working, and participating in their
community.''; and
(2) in subsection (b)--
(A) in the heading, by striking ``Young Adults and
Transitioning Youth'' and inserting ``the Health and Well-Being
of Individuals With Autism Spectrum Disorder Across Their
Lifespan'';
(B) by amending paragraph (1) to read as follows:
``(1) In general.--Not later than 2 years after the date of
enactment of the Autism CARES Act of 2019, the Secretary shall
prepare and submit, to the Committee on Health, Education, Labor,
and Pensions of the Senate and the Committee on Energy and Commerce
of the House of Representatives, a report concerning the health and
well-being of individuals with autism spectrum disorder.''; and
(C) in paragraph (2)--
(i) by amending subparagraph (A) to read as follows:
``(A) demographic factors associated with the health and
well-being of individuals with autism spectrum disorder;'';
(ii) in subparagraph (B), by striking ``young adults''
and all that follows through the semicolon and inserting
``the health and well-being of individuals with autism
spectrum disorder, including an identification of existing
Federal laws, regulations, policies, research, and
programs;''; and
(iii) by amending subparagraphs (C), (D), and (E) to
read as follows:
``(C) recommendations on establishing best practices
guidelines to ensure interdisciplinary coordination between all
relevant service providers receiving Federal funding;
``(D) comprehensive approaches to improving health outcomes
and well-being for individuals with autism spectrum disorder,
including--
``(i) community-based behavioral supports and
interventions;
``(ii) nutrition, recreational, and social activities;
and
``(iii) personal safety services related to public
safety agencies or the criminal justice system for such
individuals; and
``(E) recommendations that seek to improve health outcomes
for such individuals, including across their lifespan, by
addressing--
``(i) screening and diagnosis of children and adults;
``(ii) behavioral and other therapeutic approaches;
``(iii) primary and preventative care;
``(iv) communication challenges;
``(v) aggression, self-injury, elopement, and other
behavioral issues;
``(vi) emergency room visits and acute care
hospitalization;
``(vii) treatment for co-occurring physical and mental
health conditions;
``(viii) premature mortality;
``(ix) medical practitioner training; and
``(x) caregiver mental health.''.
(e) Authorization of Appropriations.--Section 399EE of the Public
Health Service Act (42 U.S.C. 280i-4) is amended--
(1) in subsection (a), by striking ``$22,000,000 for each of
fiscal years 2015 through 2019'' and inserting ``$23,100,000 for
each of fiscal years 2020 through 2024'';
(2) in subsection (b), by striking ``$48,000,000 for each of
fiscal years 2015 through 2019'' and inserting ``$50,599,000 for
each of fiscal years 2020 through 2024''; and
(3) in subsection (c), by striking ``there is authorized to be
appropriated $190,000,000 for each of fiscal years 2015 through
2019'' and inserting ``there are authorized to be appropriated
$296,000,000 for each of fiscal years 2020 through 2024''.
Speaker of the House of Representatives.
Vice President of the United States and
President of the Senate.

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Autism Collaboration, Accountability, Research, Education, and Support Act of 2019 — HR. 1058

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